Sometimes, not all the time though, it comes to sadly be that there is nothing humanly possible to save the life of a hydracephalus kid patient.
First, I will start by saying that its in my wish that no parents should outlive their children, but again it’s in my wish that let’s live not to dictate God’s will whatsoever. may His will prevail and I pray that he provides us with the appropriate strength to carry through suffering.
Baby James from Zambia, who responded well to treatment.
In the final days of the hydrocephalus journey, what should you do?
It’s so sad to get to a room full of children all suffering from a certain kind of disease and one of them is your child, it tears the heart away leaving you the worst emotions to control.
Childhood in my village upbringing looked like happiness, eating well and playing, but all this came to a halt when I could meet a neonate one day old in the Intensive care unit.
I have learnt to live with such facts that it is normal.
God says there is a reason for everything that happens and so it will live to stay exactly.. It’s okay for children to die, heaven is a better place, our promised land’.
Who wants to go to hell anyway?
At the end of times, what your child needs is altogether supportive care.
Pain medications to cater for the migraines, and general body pains,
Keep baby warm and comfortable, give the usual showers and try playing a little with the baby in between such moments.
Talk and smile to your baby as much as possible, you will be surprised how happy your baby will be and nothing warms the heart like those small genuine smiles of babies.
Look out for any uncomfort like difficult breathing, excess heat and if be, notify the resident health care provider for appropriate care.
Breastfeed normally or give meals as usual. Your dying angel needs nutrition to keep her fighting to leave.
Death is not easy.
Show your baby love in every way possible, hold her, kiss her, do photos with her, keep at the back of your mind that your baby is normal except the excruciating battle with the ruthless condition.
Don’t despair, God gives and takes, when your child finally leaves, grieve a little and pray asking God for strength to be over the traumatic experience.
Your baby has not gone to school, graduated, had first kiss, married etc etc to death, like life should be, but she is privileged enough to start life in a better place than here in this planet earth.
All is well!